National Rare Diseases Day

A diverse group of people with unique hairstyles, clothing styles and accessories, coming together to support individuals with rare diseases. Each person carries a symbolic item representing a different rare disease.. — National rare diseases day illustration, AI generated

Welcome to National Rare Diseases Day, a day to bring awareness to those who are living with rare diseases and to show support for their loved ones. On this day, we shine a light on conditions that may not always get the attention they deserve. So let's dive into the fascinating world of rare diseases and learn more about their impact on individuals and communities around the globe.

When is Rare Diseases Day?

It's national rare diseases day on the 29th February.

The Origins of National Rare Diseases Day

Did you know that National Rare Diseases Day was established to raise awareness about the challenges faced by people living with rare diseases? It all started with a simple question: how can we shed light on these conditions and provide support for those affected?

In 2008, Rare Diseases Day was launched internationally by the European Organization for Rare Diseases (EURORDIS) to address this exact issue. The aim was to educate the public, policymakers, and healthcare professionals about rare diseases and the impact they have on the lives of those affected.

Since then, this significant observance has gained momentum worldwide, with various countries recognizing the day and organizing events to spread knowledge and support individuals facing the complexities of rare diseases.